The open gym at Dynamite Agility Center was a huge success! So many families came out and showed their strength for Max in the fight against SMA: jumping on trampolines, wending their way across the balance beams, bouncing into the pit of foam blocks, or guiding their little ones through the agility center's various stations. In the party room, the video of Max using the WREX arm for the first time played on the big screen TV, as people learned about spinal muscular atrophy and other disabilities, the value of physical therapy, and devices like the WREX.
Thanks to everyone who showed up, as well as the HUGE outpouring of support for Max's online campaign, we were able to raise the money to purchase Max his very own set of WREX arms! We contacted the team at NEMOURS and let them know we were ready for the next steps and have been corresponding with them to get everything they need. As with his adaptive stroller, we're finding that ordering and making custom equipment takes time. We are trying to be patient, checking back as often as possible, and doing our best to have as much summer fun with Max as possible.
We will continue to keep you all posted on the process. We look forward to reporting someday soon that, thanks to you, Max has his own pair of WREX arms.
Thanks to everyone who showed up, as well as the HUGE outpouring of support for Max's online campaign, we were able to raise the money to purchase Max his very own set of WREX arms! We contacted the team at NEMOURS and let them know we were ready for the next steps and have been corresponding with them to get everything they need. As with his adaptive stroller, we're finding that ordering and making custom equipment takes time. We are trying to be patient, checking back as often as possible, and doing our best to have as much summer fun with Max as possible.
We will continue to keep you all posted on the process. We look forward to reporting someday soon that, thanks to you, Max has his own pair of WREX arms.
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