Kristen was one of a handful of SMA community representatives invited to testify about the burdens of life with SMA before FDA representatives at this week's SMA Patient-Focused Drug Development Meeting.
Meetings like this help show how FDA decision-makers are actively listening to the patient populations affected by their decisions.
Watch her brief testimony by clicking on the video below...or read her testimony in full on the Cure SMA website.
Meetings like this help show how FDA decision-makers are actively listening to the patient populations affected by their decisions.
Watch her brief testimony by clicking on the video below...or read her testimony in full on the Cure SMA website.
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