Max's Setup

PictureMax's rolling tower, containing all of his medical machines
Max uses a few extra "accessories" to keep him feeling great and ready to take on the world.
​Here are some details:

Max's machines (hooked to him, or within reach, all the time)
  • Trilogy 100 ventilator (by Philips Respironics)
  • CoughAssist T70 (by Philips Respironics)
  • Massimo Rad8 pulse oximeter
  • EasyGo VAC portable suction
  • Enteralite Infinity feeding pump (by MOOG)
  • Fisher & Paykel MR410 humidifier
  • AMBU bag, emergency trach kit (see below)
  • ..all stored on the rolling vent tower designed for the Trilogy 100
PictureMax's Permobil K450 power wheelchair, "fully loaded"
On the go
PictureMax tasting pineapple in a Munchkin tasting bag
Diet
  • does not eat by mouth (but will taste things)
  • receives feeds via g-tube (Mic-Key button)
  • blenderized diet using "amino acid" formula (Vivonex Pediatric)
    • developed in consultation with dietician at children's hospital where Max is followed
    • fruit, vegetables, grain
    • ​walnut oil, salt, multivitamin
    • 1200 ml / day
    • administered in 200ml boluses, every 4 hours, rate 150ml/hr (120ml/hr asleep)
  • Blendtec Total Blender Classic (industrial grade blender suited for heavy/daily use)
PictureMax in his stander
Orthotics and Assistive Devices
PictureMax during PT
Therapies
  • Physical
    • 1 PT visit/week PT through county school system
    • 2-3 PT visits/week from private PT (mocomc.com)
    • additional consults as needed with PT from county school system's assistive technology group (usually for equipment adjustments)
  • Occupational
    • 1 OT visit/week from county school system
    • variable frequency OT visits from private OT through mocomc.com
    • additional consults as needed with OT from county school system's assistive technology group (usually for communications solutions)
  • Speech
    • 1 SLP visit/week from county school system
    • daily oral motor exercises
    • additional consults as needed with SLP from county school system assistive technology group (focusing on communication solutions)
PictureMax playing with orchestra toy, communication board.
Communication
  • Manual communication boards (assorted)
  • Eyegaze hardware
    • current: PRC Accent 1400 (on loan from school system)
      • ​DASSY rolling floor stand
      • secondary monitor-based mount
    • past: Microsoft Surface Pro 4 tablet with Tobii EyeX (pic)
      • Standzout floor stand
  • Eyegaze software / languages
    • CoughDrop (on the Surface Pro, iPad, and assorted Android tablets)
    • NuVoice (on the PRC device)
  • VocaliD custom voice module
  • Ablenet Blue2 bluetooth switch
  • Microlight switches

 Software
  • Reading
  • Music making
  • Assistive
  • Religious
    • JITap
  • Control
    • Duet for mirroring Windows PC on iPad (for instructor on-screen interactions)
PictureMax's first trip down his new path
Home renovations
  • Wheelchair-friendly path from back of house
  • Removed wall between kitchen and dining room
  • Take door into "gym" room off hinges and remove entirely for easier entry/exit
  • Replace bathroom sink with smaller footprint pedestal sink to better accommodate Max's tower of machines
  • Add a second door into Max's room offering straight-ahead access from the main living space
  • Reconfigure / replace furniture for a more open layout that better accommodates a power wheelchair driver
PictureReal-time medical stats on-the-go using SmartThings and InitialState
Home automation​​​For more info on home automation, check out facebook.com/groups/SmartHomesForSpecialNeeds
PictureAn adapted swingset
Adaptability For more Adaptability tips and tricks, join facebook.com/groups/SMAadaptability
PictureMax's BEAM
Assorted Tech

This video shows how we've set up our home to facilitate Max's daily activities: